"My son was diagnosed with Crohn’s Disease, an incurable, lifelong chronic illness. This has inspired me to do whatever I can to help other patients and families navigate Inflammatory Bowel Diseases (IBD). Connecting to Cure Crohn's and Colitis has been my rock for over 6 years. Our journey has been supported with incredible advice and love."
"I had never thought about joining a support group before but I wish I joined sooner. The Connecting to Cure caregiver support group has played such a vital role in supporting our family throughout our daughter's IBD journey. Through the group, I have felt so supported by meeting families just like ours who are navigating this uncharted territory of IBD together. I have never felt connected to a group of individuals more than ever. Before becoming a part of the group, I felt alienated as none of my other friends, family members, and even doctors could identify with the emotions that we were going through as we tried so hard to get our daughter into remission. The Connecting to Cure group has fulfilled that void that I felt. We share our experiences and we laugh and we cry together. As we go through our daughter's journey with IBD, we are hopeful that we find the light at the end of the tunnel and find a cure for IBD."
"My daughter's IBD diagnosis at 8-years-old was the worst thing that ever happened to me in my over 50 years of life. I was slowly and sadly learning that this was something I could not fix. My husband and I were willing to do anything but we soon found out that there is no cure. I didn't know anyone else who had a child with this disease. I had so many questions for her doctor every time I went to her appointments. I had many friends that offered their genuine love and support but, they were the first to admit that they didn't truly know what it was like to be in the situation we were in. I was in need of emotional support from people who really understood. Thankfully, that is when I discovered C to C. I have received amazing and up-to-date medical information. Most importantly, I have received the emotional support and friendship from other caretakers who know EXACTLY what I'm experiencing. Finding C to C was the one good thing that came out of COVID because I was able to locate them on Zoom. I literally live on the other side of the country but it feels like I'm in the room with the other members. My biggest hope will always be that they find a cure for IBD but I know that while I'm waiting for that, I am not alone."
"I have suffered with IBD since 1987 when I was 15 years old. It’s been a struggle to stay or get into remission, and I’ve had my colon removed, so there have been some very dark days in my quest to stay or get healthy. I have been on every medication (biologic or otherwise) and nothing has really held me in remission for more than 5 years - which is pretty good, but at present I am trying to find something that will work for me now as I have been in a nasty flare up for the past 6 months.That said, I never felt like I was too far away from the best care available. I am appreciative of my former physician who was knowledgable in the area of most concern for me - living with a JPouch and keeping that pouch ulcer and inflammation free. My current doctor has a well run office and mostly, I can get the care and attentions I need. Working with and being on the board of Connecting to Cure along with the excellent care of my medical team has provided me with a safe space and the medical assurance we all need when coping with Crohn’s Disease. My hope is obviously to find a cure for anyone living with or affected by IBD. Crohn’s Disease Patient"
Crohn's Disease Patient