SUPPORT PROGRAMS

Support Groups for patients, parents, spouses, partners and family members affected by IBD.
Connections peer-to-peer connections and support to families for newly diagnosed Crohn's and ulcerative colitis patients and families.
Connect2Connect our mentorship program pairs older teens or young adults with IBD with a younger patient with Crohn’s or colitis.

Testimonials

 

My son was diagnosed with Crohn’s Disease, an incurable, lifelong chronic illness. This has inspired  me to do whatever I can to help other patients and families navigate Inflammatory Bowel Diseases (IBD).  Connecting to Cure Crohn's and Colitis has been my rock for over 6 years.  Our journey has been supported with incredible advice and love.

Bette F

Thank you so much!! This is one of the highlights of my month. Everyone is so supportive and I’m very appreciative of everything you and Ben do to make this happen.

Anonymous

I had never thought about joining a support group before but I wish I joined sooner.  The Connecting to Cure caregiver support group has played such a vital role in supporting our family throughout our daughter's IBD journey. Through the group, I have felt so supported by meeting families just like ours who are navigating this uncharted territory of IBD together. I have never felt connected to a group of individuals more than ever. Before becoming a part of the group, I felt alienated as none of my other friends, family members, and even doctors could identify with the emotions that we were going through as we tried so hard to get our daughter into remission. The Connecting to Cure group has fulfilled that void that I felt. We share our experiences and we laugh and we cry together. As we go through our daughter's journey with IBD, we are hopeful that we find the light at the end of the tunnel and find a cure for IBD. 

Kareena

 

My daughter's IBD diagnosis at 8-years-old was the worst thing that ever happened to me in my over 50 years of life.  I was slowly and sadly learning that this was something I could not fix. My husband and I were willing to do anything but we soon found out that there is no cure. I didn't know anyone else who had a child with this disease.  I had so many questions for her doctor every time I went to her appointments.   I had many friends that offered their genuine love and support but, they were the first to admit that they didn't truly know what it was like to be in the situation we were in.  I was in need of emotional support from people who really understood.

Thankfully, that is when I discovered C to C.  I have received amazing and up-to-date medical information.  Most importantly, I have received the emotional support and friendship from other caretakers who know EXACTLY what I'm experiencing.  Finding C to C was the one good thing that came out of COVID because I was able to locate them on Zoom.  I literally live on the other side of the country but it feels like I'm in the room with the other members.  My biggest hope will always be that they find a cure for IBD but I know that while I'm waiting for that, I am not alone.

Barbara

 
 

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