Stacy Dylan, co-founder of Connecting to Cure Crohn’s and Colitis, is passionate in her support of patients with chronic medical conditions. As an advocate for her son Lowell, who was diagnosed with Crohn’s disease at the age of two, she saw the need to create a community for families, caregivers, and individuals who face the challenges of coping with an Inflammatory Bowel Disease. C to C fills that need, providing a network of support while educating the public about the seriousness of these diseases, and fundraising for research that will lead to new treatments for both the pediatric and adult population.
Lowell has undergone many serious surgeries, as well as periods of time when he could not eat solid food, countless procedures, medical tests, hospital stays, and doctor’s visits both in Los Angeles and out-of-state. He has been on many medications and has either lost response or had negative reactions. Stacy Dylan and Dana Zatulove met in 2010, when they joined Team Challenge, the endurance training and fundraising program of the Crohn’s and Colitis Foundation, and trained for the Napa-to-Sonoma half-marathon. The plan to start their own foundation was hatched during their long training runs.
Stacy received her BA in Art History from Hampshire College in 1989, where she met her husband Sam, with whom she has two sons. She received her MA in clinical psychology in 1995 and has practiced as a licensed marriage and family therapist.
Dana Zatulove’s son Brian was diagnosed with ulcerative colitis at eight years old. Upon learning that her son had a lifelong chronic illness, she felt she had to take action to help find a cure for all those who live with Inflammatory Bowel Disease. As a parent, Dana knows the difficulty of watching a child suffer from this debilitating condition, and is dedicated to raising awareness and funds to find a cure for Crohn’s and colitis. She looks forward to expanding the scope and range of Connecting to Cure’s mission.
Dana received her BA in Sociology from the University of Oregon.
Joshua Hart has been living with Crohn’s for 40+ years, having developed symptoms at the age of three and diagnosed with Crohn’s at five. He has been involved in the IBD community for many years, serving as a counselor for Crohn's and colitis camps at the Painted Turtle Camp and other camps for over 20 years.
Joshua is a hands-on financial professional who has worked in both public and privately held companies in the entertainment and internet industries. He is currently VP of Finance at Streamland Media, a global comprehensive post-production business with offices in Los Angeles, Vancouver, Copenhagen and the United Kingdom. The Company provides critical post-production services including finishing, sound design and editing, color editing, dailies and visual effect services.
He graduated from University of California, Los Angeles with a BA in Business/Economics.
Alex Akers was diagnosed with Crohn's Disease during high school and he has lived with active IBD ever since. Following his diagnosis, Alex immersed himself with all things IBD, including participating in a variety of advocacy and fundraising events with the Crohn's & Colitis Foundation (CCF). He met the Co-Founder of C to C, Stacy Dylan, and her son Lowell at IBD Day on the Hill when they were there meeting with legislators to affect change in policy that affects those living with these chronic illnesses. Alex also served on the CCF's National Youth Leadership Council during college and then joined the Los Angeles Board of Trustees. He has been a volunteer at C to C events since its inception and is now a board member. Alex is an advocate for all Crohns & Colitis patients, parents, and caregivers.
Alex is a Management and Technology Consulting Professional in the Media and Entertainment industry, where he has worked with the major studios on large scale technology initiatives. He currently works at KlarisIP, a boutique consulting firm specializing in IP rights and royalties, digital assets, and metadata.
Andrew Berman's wife Marci has Crohn's disease. He is a past President of the Board of Trustees of the Crohn’s and Colitis Foundation of America Los Angeles/Orange County Chapter and a former Board Member.
He is an entertainment industry veteran with over thirty years of experience in global sales, marketing, and distribution of entertainment content, having worked with such companies as MGM, TMS/Sega, Starz Media, Fremantle Media, Genius Brands International, and his own entertainment firm ARB International.
He graduated from California State University at Northridge in 1981 with a BA in Radio, Television and Film. He is Chairman of the Board of Directors of the Los Angeles Jewish Home for The Aged, serves on the Board of Directors for Stephen S. Wise Temple, co-chair of the Erasing the Stigma gala for Didi Hirsch Mental Health Services and is a licensed California Real Estate agent.
Lesley Bloom is the mother of Danya, Jack, and Erika. All three children have Crohn’s disease. They were each diagnosed at different stages of their lives, but the pain and suffering are the same. They have an intense bond greater than most siblings that helps them fight this life-long battle.
When Stacy and Dana asked her to join the board of Connecting to Cure Crohn’s and Colitis, she jumped at the opportunity to help. Not only has being part of C to C helped raise money for research, but it has connected her to other families who support each other.
Lesley is the Admissions Director at Pressman Academy Day School, where she meets a wide variety of families and leads tours of the school.
Lesley obtained her BA in Child Development from Cal State Northridge.
Benjamin is an Actor, Director and Writer. He is presently most recognized as the father, “Pete Rooney” on the Disney Channel series “Liv and Maddie” which he worked on from 2012 through 2015. While on the show he was given a lifelong dream opportunity to direct, and he is now writing pilots and films with his writing partner who lives in New York.
Benjamin has been married for 16 years with two teenage daughters and three pups. The support and understanding of his family allows him to spend time helping whomever he can who is affected by IBD, most notably through his association with Connecting to Cure Crohn’s and Colitis.
Benjamin is a native of Los Angeles, who was diagnosed with Ulcerative Colitis when he was 15. Then at the age of 37 he had his colon removed and was subsequently re diagnosed with Crohn’s Disease, for which there is still no cure.
He is honored to help facilitate support groups for Connecting to Cure, for both patients and family members who are touched by these diseases. He is passionate about spreading awareness to help remove the stigma associated with Inflammatory Bowel Disease. He desperately looks forward to the day there is a cure and vaccine for these age indiscriminate and often sinister diseases that strike so many people, who suffer in silence due to the private and deeply personal nature of IBD.
Golf Event Chair
Jill Nordquist’s oldest son Noah was diagnosed with Crohn’s disease when he was 12. With no family history of the disease, it became Jill’s mission to understand how and why children get the disease, and in 2013 she began to fundraise and learn more about treatments. Because of Noah's passion for sports and his love of golfing, Noah and Jill started the Chip In for Crohn’s Golf Tournament in 2014. In addition to raising funds the tournament increases awareness of the disease and has been featured on the local news. Seven years after Noah's diagnosis, Jill's younger son, Jackson, was diagnosed with Crohn's at age 16. Jackson has also played a major role in fundraising efforts.
Jill is a marketing executive with over 20 years of corporate brand management experience. Jill has worked for Dep Corporation, Mattel and Jakks Pacific. Jill is currently Senior Vice President at Jakks Pacific, Inc.
She graduated from Occidental College with a BA in English & Comparative Literary Studies.
Danny first experienced the heart-breaking challenges of Crohn’s disease when his two adult sons, Ben and Jacob, were diagnosed as pre-adolescents. Today, both Ben and Jacob are leading happy, productive lives, keeping their symptoms in check through drug therapies and diet, but the threat of recurring and severe health problems looms constantly. Danny empathizes with families whose loved ones suffer from IBD-related health problems, and is committed to expanding CtoC’s fundraising efforts and community support initiatives throughout Southern California and beyond. He was actively involved in CCFA for several years, serving on the Board of Trustees for its Los Angeles Chapter, and is excited to be working with CtoC.
Danny is a veteran entertainment executive who advises companies on film financing and distribution, production, and long-term strategy. During his career, he has previously served as COO of Overture Films and as President of United Artists, has held various other management positions at MGM and Disney. He graduated from the University of California, Santa Barbara with a BA in Business Economics. In addition to C to C, Danny currently serves on the Board of Directors of the Los Angeles Jewish Home for The Aging and the Brandman Centers for Senior Care.
Merry Traum’s son Keaton McNamara was diagnosed with IBD at age ten. He has had three surgeries and spent countless hours being sick and in and out of hospitals. His entire colon was removed, and he now has a JPouch, (an internal solution to replacing the colon). Although his health has improved, watching what he has been through inspires Merry to participate in raising awareness and helping others with IBD.
Childhood friends from Woodstock NY, Merry and Stacy Dylan reconnected in Los Angeles upon realizing that both their sons had IBD. Merry is invested in furthering the mission of Connecting to Cure, and to raising money for research and education.
Merry works as a Makeup Artist in the television and film business. She has her Bachelor’s degree from Skidmore College.